We walk in honor of Grace. She is our spunky 4 year old that was diagnosed with ARPKD at 1 month old. We had another hospitalization free winter! As of now her kidneys are functioning at 50% and her liver is starting to show signs of slowing down. She had another doctor added to her team this year and now gets to see an Endocrinologist 2 times a year along with a Nephrologist, G.I. specialist, and a Pulmonary specialist. Her nephrologist expects a liver and kidney transplant before the age of 10. She is one tough girl but how can you not be with 3 older brothers! :) Fight on!