Twin Cities Walk for PKD

God's Grace


We walk in honor of Grace. She is our spunky 4 year old that was diagnosed with ARPKD at 1 month old. We had another hospitalization free winter! As of now her kidneys are functioning at 50% and her liver is starting to show signs of slowing down. She had another doctor added to her team this year and now gets to see an Endocrinologist 2 times a year along with a Nephrologist, G.I. specialist, and a Pulmonary specialist. Her nephrologist expects a liver and kidney transplant before the age of 10. She is one tough girl but how can you not be with 3 older brothers! :) Fight on!

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PKD Foundation

We are the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD to improve the lives of those it affects.

Our vision is that one day no one will suffer the full effects of PKD.

Our home: 1001 E. 101st Terrace, Suite 220, Kansas City, MO, 64131

PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
Federal tax ID: 43-1266906

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